A pedido do deputado federal Lula da Fonte (PP/PE) o Congresso Nacional se iluminou de vermelho nesta quarta-feira (8) em homenagem ao Dia Internacional da Talassemia. A doença, genética e crônica, gera a produção de hemácias defeituosas. Nos casos mais graves, os pacientes necessitam regularmente de transfusões de sangue. No mundo 100 milhões de pessoas em todo o mundo são portadoras de genes da talessemia. Mais de 300 mil bebês nascem anualmente com formas graves da doença, segundo a Federação Internacional de Talassemia.
“É um dia muito importante de conscientização. É salutar a gente tomar medidas para chamar a atenção das pessoas a respeito da Talassemia e prevenir as doenças de sangue no geral. Tomei essa iniciativa para despertar o máximo de brasileiros para essa conscientização”, acentuou Lula da Fonte.
A celebração da data visa aumentar a consciencialização sobre esta condição e o seu impacto, ao mesmo tempo que valoriza a solidariedade das pessoas resilientes.
O foco das ações neste ano é defender um mundo onde todas as pessoas com talassemia, independentemente da sua localização ou situação econômica, tenham acesso igual a um diagnóstico adequado, opções de tratamento existentes e futuras e cuidados de saúde completos.
Diagnóstico e sintomas
O diagnóstico da doença é feito por meio da história clínica do paciente, sua origem étnica (já que a enfermidade genética é originária de países da área do mediterrâneo) e exames laboratoriais, entre eles a eletroforese de hemoglobina quantitativa e qualitativa para determinar o tipo da doença.
Os sintomas estão diretamente relacionados com a gravidade da doença. Os mais comuns são: cansaço e fraqueza; palidez e icterícia; atraso no crescimento; abdômen desenvolvido; aumento do baço e alterações ósseas.
Ainda não se conhece a cura para a talassemia, mas há opções de tratamento que permitem o controle.
Interrupção da iluminação
No período de 20h às 24h, a iluminação será interrompida para dar lugar à projeção das cores da bandeira do Rio Grande do Sul (verde, vermelha e amarela), em solidariedade ao povo gaúcho que enfrenta graves enchentes naquele estado.
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