O deputado federal Eduardo da Fonte (PP-PE) classificou como “corretíssima” a decisão do governo federal de zerar impostos de importação para remédios usados no tratamento da Atrofia Medular Espinhal (AME).
Em documento enviado à Presidência da República, o parlamentar reiterou a necessidade do Ministério da Saúde inserir o exame para diagnóstico precoce da doença no Teste do Pezinho.
“Nós apresentamos o PL 3736/20, que obriga a realização de exames para diagnosticar doenças raras em recém-nascidos. Debatemos o projeto com associações ligadas à causa e fica muito claro que este é o melhor momento para eventualmente começar um tratamento. É quando há maior possibilidade de dar maior qualidade de vida para quem for diagnosticado com alguma doença rara”, explicou Eduardo da Fonte.
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